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Outcome Measures:
​Information for Professionals

Latest news on SMA outcome measures, outcome measure research and freely accessible manuals and proformas

SMA Type 2 & 3 - The Revised Hammersmith Scale

5/7/2017

 
This post details the key development papers regarding the Revised Hammersmith Scale for SMA (RHS) in addition to its manual and testing proforma.  If you are transitioning between use of the HFMS/HFMSE and the RHS we would recommend use of the joint RHS/HFMSE* testing proforma for at least one session prior to using the RHS alone, that way you will get smooth transition of scores to enable ease of comparison with previous assessments without compromising longitudinal data collection.  If you have not used the Hammersmith Scale previously we would recommend using the RHS proforma from the outset.

Manual

RHS Manual version 1.0
File Size: 2120 kb
File Type: pdf
Download File

RHS Proforma

RHS Proforma 17.03.2015
File Size: 466 kb
File Type: pdf
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*RHS/HMFSE Proforma

*Using the combined RHS/HFMSE testing form (page 44 of the RHS manual) - the form is set out in the order of the RHS, underneath the RHS item is the corresponding HFMSE item, this is so that the patient will only do one activity whilst you score it in according the the RHS or HFMSE scoring criteria.   This does not add any additional burden to the patient or any additional time on the assessment.  By using this form you can derive and HFMS, HFMSE, RHS and WHO motor milestone score.   The number of the HFMSE item is denoted in the HFMSE scoring column, to score the HFMS use only HFMSE items 1-20.  Please refer to page 40 of the RHS manual for further details.
RHS with HFMSE Proforma 17.03.2015
File Size: 478 kb
File Type: pdf
Download File

Key Publications:
Ramsey et al., (2017) Revised Hammersmith Scale for Spinal Muscular Atrophy: A SMA specific clinical outcome assessment tool, PLOS ONE, 12(2): e0172346.

SMA Type 2 & 3 - Hammersmith Functional Motor Scale Expanded

11/21/2016

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This post details the key development papers regarding the Hammersmith Functional Motor Scale Expanded in addition to its manual and testing proforma.  The scale can be tested as the HFMS/MHFMS (20 items, total score 40) or the HFMSE (33 items, total score 66).

Manual

Proforma

Key Publications:
​
Main et al., (2013) The Hammersmith functional motor scale for children with spinal muscular atrophy: a scale to test ability and monitor progress in children with limited ambulation. European Journal of Paediatric Neurology. 7 (4): 155-9

Krosschell et al., (2006) A modified Hammersmith functional motor scale for use in multi-center research on spinal muscular atrophy. Neuromuscular Disorders. Jul:16 (7) 417-26

O'Hagen et al., (2007) An expanded version of the Hammersmith Functional Motor Scale for SMA II and III patients. Neuromuscular Disorders. Oct:17 (9-10) 693-7
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    Author

    Danielle Ramsey
    ​Research Physiotherapist
    SMA REACH UK ​


    Information for Families
    Revised Hammersmith Scale Manual & Forms

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    ​© SMA REACH UK 2017
    Picture Credit:
    By Simon A. Eugster (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons
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