SMA REACH UK Patient Information
Recent discoveries and advances in SMA have led to the development of potential therapeutic treatments. To ensure that the UK is ready for clinical trials we require a robust clinical and research network to collect high quality longitudinal data on SMA. Part of SMA REACH UK is also to ensure that functional scales and outcome measures (used to measure the physical and medical impact/course of SMA) are clinically relevant and valid for clinical trials in the UK. By creating a robust national database and ensuring that we are using a standardised approach to the assessment of SMA we are working to improve the standards of care for people with SMA in the UK.
The SMA REACH UK database will be formed from information collected at routine Neuromuscular medical and physiotherapy appointments where the Doctor and Physiotherapist will collect and record specific information about your SMA from their assessments. If you are interested in learning more about this study and what it would involve please see the information leaflets below.
Please do not hesitate to contact the study team if you require any further information.
The SMA REACH UK database will be formed from information collected at routine Neuromuscular medical and physiotherapy appointments where the Doctor and Physiotherapist will collect and record specific information about your SMA from their assessments. If you are interested in learning more about this study and what it would involve please see the information leaflets below.
Please do not hesitate to contact the study team if you require any further information.

1. Information leaflet for parents/guardians | |
File Size: | 72 kb |
File Type: |

2. Information leaflet 16 - 18 years | |
File Size: | 158 kb |
File Type: |

3. Information leaflet 11 - 15 years | |
File Size: | 213 kb |
File Type: |

4. Information leaflet 6 - 10 years | |
File Size: | 217 kb |
File Type: |
SMA REACH UK & UK SMA Patient Registry

SMA REACH UK & UK SMA Patient Registry | |
File Size: | 361 kb |
File Type: |

UK SMA Patient Registry Information Leaflet | |
File Size: | 622 kb |
File Type: |