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SMA Outcome Measures

Functional outcome measures used in SMA - information for families and professionals

What are outcome measures?

The Hammersmith Scale - What is it?

11/19/2016

 
Picture
The Hammersmith Functional Motor Scale (HFMS) was originally developed to assess the physical abilities of children with non-ambulant Spinal Muscular Atrophy, it was developed by Marion Main and colleagues at the Hammersmith Hospital in 2003.  It consists of 20 items which they felt were important to to measure the physical functioning of those with SMA type 2 and those who are SMA type 3 who are no longer independently mobile, and was ordered in level of item difficulty.  The physiotherapist asks the person with SMA to do a specific activity such as rolling and they then grade the quality and execution of that movement on a scale of 0 being unable, 1 performed with some compensation, and 2 unaided.  The total score achievable on the orginal HFMS is 40 (Main et al, 2003).  ​

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What are outcome measures and why are they so important?

11/18/2016

 
Outcome measures are the tools which are used by your Physiotherapist, Doctor, Nurse, Health Professional and others to assess and measure your current ability, physical function and medical condition.  Outcome measures may take many forms for example a measurement of muscle power or length, a series of activities you are asked to perform which the medical professional rates using an objective rating scale (clinical outcome assessment), or a self-reported questionnaire which you have to fill in (patient/parent reported outcome) to name just a few.

In 
Spinal Muscular Atrophy and with regards this section the outcome measures we refer to are the tests used during your review appointment with the physiotherapist.  

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    Author

    Danielle Ramsey
    ​Research Physiotherapist
    SMA REACH UK 


    What are Outcome Measures?
    The Hammersmith Scale Explained
    Revised Hammersmith Scale
    Revised Hammersmith Scale Manual & Forms
    Information for Professionals

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    ​© SMA REACH UK 2017
    Picture Credit:
    By Simon A. Eugster (Own work) [GFDL (http://www.gnu.org/copyleft/fdl.html) or CC BY-SA 3.0 (http://creativecommons.org/licenses/by-sa/3.0)], via Wikimedia Commons
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